Andrew C. Grundy

carers and family members, and other members of the public can be involved in these different research stages, and demonstrate the impact that this involvement can have. Examples of different ways of involving and engaging public members in research studies are drawn from the Enhancing the Quality of User-Involved Care Planning in Mental Health Services (EQUIP) research programme. Learning objectives By the end of this chapter you should be able to: 1. Understand the different stages of the research process 2. Understand the impact of Patient and Public Involvement in

in A research handbook for patient and public involvement researchers
Open Access (free)
James Bowen and Jonathan Purkis

Part 1I Doing The following four chapters provide a snapshot of a number of debates and critical positions which inform contemporary anarchist practice. The specific areas covered offer unique perspectives on aspects of socialisation – sexuality, education, addiction and mental health – and how this can be challenged at a number of different levels. Each of the contributors comes from a specialist professional or activist background (rather than an established academic one), and to varying degrees the chapters bear out points made in Part I, ‘Thinking’ regarding

in Changing anarchism
Open Access (free)
Designing and road testing new measurement scales
Patrick Callaghan

project developed a good quality PROM for assessing user and carer involvement in care planning, the first such measure of its kind in mental health. 83 BEE (RESEARCH) PRINT.indd 83 11/05/2018 16:15 This chapter will examine the origins of measurement scales in research by considering the science of psychological testing. In particular the chapter will provide a brief definition of a measurement scale, outline why scales are used, examine the design and evaluation of scales, discuss what the responses to scales mean, outline advantages and limitations of their use

in A research handbook for patient and public involvement researchers
Bonnie Evans

Disrupting the welfare state’s ‘bonds of love’ If the Children Act 1948 and the publication in 1955 of the Underwood Report of the Committee on Maladjusted Children were significant moments in the formation of government policy towards children based on the Tavistock Model of Human Relationships, then the Mental Health Act 1959, the 1970 Local

in The metamorphosis of autism
Bonnie Evans

outcomes’. Such an approach has had support from Bakare in Nigeria and in other locations where professionals face many economic challenges in establishing effective networks of care and education for children with an autism diagnosis. 126 The approach is also supported by the WHO’s Mental Health Gap Action Programme, which provides guidance to developing countries on how to deal with

in The metamorphosis of autism

This book was developed during a five-year research programme funded by the UK’s National Institute for Health Research (NIHR). This study aimed to improve service user and carer involvement in care planning in mental health services. The study was called Enhancing the Quality of User Involved Care Planning in Mental Health Services (EQUIP). Its aim is to help other public and patient representatives increase their understanding and skills in research methods. The EQUIP programme used a range of different research methods to achieve its goals, and you will read

in A research handbook for patient and public involvement researchers

An overview of the EQUIP study The EQUIP study aimed to improve service user and carer involvement in care planning in mental health services. We co-developed with service users and carers a training package for mental health professionals so that they would be better equipped to involve users and carers in their care. Service users and carers helped to design, shape and conduct the EQUIP study and you can learn more about their experiences in Chapter 1. During the EQUIP programme, we worked with service users and carers to develop a new instrument, a patient

in A research handbook for patient and public involvement researchers
Helen Brooks, Penny Bee, and Anne Rogers

involvement be instilled • How in the care planning process? is the role and influence of individuals, teams and organisational • What factors in achieving high quality user-involved care planning? are carers’ experiences of the care planning process for people • What with severe mental illness? are professionals’ perceptions and experiences of delivering • What mental health care planning and involving service users and carers A Research Handbook for Patient and Public Involvement Researchers In relation to EQUIP, qualitative research methods were used to explore current

in A research handbook for patient and public involvement researchers
Helen Brooks, Penny Bee, and Anne Rogers

, you’re not expected to know what all this jargon means. Carer 1013, male, 27, cares for a brother with a diagnosis of bipolar disorder A Research Handbook for Patient and Public Involvement Researchers Figure 26 Examples of themes from an EQUIP paper exploring the role of carers within the care planning process Confidentiality as a barrier to involving carers in mental health care planning So it was like huge barricades up around this trivial information, trivial stuff. So… that in itself as you can imagine, was intensely upsetting and, and infuriating. But it

in A research handbook for patient and public involvement researchers
Patrick Callaghan and Penny Bee

Quantitative Data Analysis Patrick Callaghan and Penny Bee Chapter overview Quantitative data analysis makes sense of numerical data. We often refer to quantitative data analysis as statistical analysis, and you may see this term used in published research papers. We can use numbers to summarise the experiences or characteristics of a group of participants, for example their average age or the number of symptoms they report. We can also use numbers to look at people’s behaviours, experiences and views, for example the number of people using mental health

in A research handbook for patient and public involvement researchers