What does it mean to personalise cancer medicine? Personalised cancer medicine explores this question by foregrounding the experiences of patients, carers and practitioners in the UK. Drawing on an ethnographic study of cancer research and care, we trace patients’, carers’ and practitioners’ efforts to access and interpret novel genomic tests, information and treatments as they craft personal and collective futures. Exploring a series of case studies of diagnostic tests, research and experimental therapies, the book charts the different kinds of care and work involved in efforts to personalise cancer medicine and the ways in which benefits and opportunities are unevenly realised and distributed. Investigating these experiences against a backdrop of policy and professional accounts of the ‘big’ future of personalised healthcare, the authors show how hopes invested and care realised via personalised cancer medicine are multifaceted, contingent and, at times, frustrated in the everyday complexities of living and working with cancer. Tracing the difficult and painstaking work involved in making sense of novel data, results and predictions, we show the different futures crafted across policy, practice and personal accounts. This is the only book to investigate in depth how personalised cancer medicine is reshaping the futures of cancer patients, carers and professionals in uneven and partial ways. Applying a feminist lens that focuses on work and care, inclusions and exclusions, we explore the new kinds of expertise, relationships and collectives involved making personalised cancer medicine work in practice and the inconsistent ways their work is recognised and valued in the process.
This book examines the relationship between environmental justice and citizen
science, focusing on enduring issues and new challenges in a post-truth
age. Debates over science, facts, and values have always been pivotal within
environmental justice struggles. For decades, environmental justice activists
have campaigned against the misuses of science, while at the same time engaging
in community-led citizen science. However, post-truth politics
has threatened science itself. This book makes the case for the importance of
science, knowledge, and data that are produced by and for ordinary people living
with environmental risks and hazards. The international, interdisciplinary
contributions range from grassroots environmental justice struggles in American
hog country and contaminated indigenous communities, to local environmental
controversies in Spain and China, to questions about “knowledge justice,”
citizenship, participation, and data in citizen science surrounding
toxicity. The book features inspiring studies of community-based participatory
environmental health and justice research; different ways of sensing,
witnessing, and interpreting environmental injustice; political strategies for
seeking environmental justice; and ways of expanding the concepts and forms of
engagement of citizen science around the world. While the book will be of
critical interest to specialists in social and environmental sciences, it will
also be accessible to graduate and postgraduate audiences. More broadly, the
book will appeal to members of the public interested in social justice issues,
as well as community members who are thinking about participating in citizen
science and activism. Toxic Truths includes distinguished contributing authors
in the field of environmental justice, alongside cutting-edge research from
emerging scholars and community activists.
Given the significant similarities and differences between the welfare states of Northern Europe and their reactions to the perceived 'refugee crisis' of 2015, the book focuses primarily on the three main cases of Denmark, Sweden and Germany. Placed in a wider Northern European context – and illustrated by those chapters that also discuss refugee experiences in Norway and the UK – the Danish, Swedish and German cases are the largest case studies of this edited volume. Thus, the book contributes to debates on the governance of non-citizens and the meaning of displacement, mobility and seeking asylum by providing interdisciplinary analyses of a largely overlooked region of the world, with two specific aims. First, we scrutinize the construction of the 2015 crisis as a response to the large influx of refugees, paying particular attention to the disciplinary discourses and bureaucratic structures that are associated with it. Second, we investigate refugees’ encounters with these bureaucratic structures and consider how these encounters shape hopes for building a new life after displacement. This allows us to show that the mobility of specific segments of the world’s population continues to be seen as a threat and a risk that has to be governed and controlled. Focusing on the Northern European context, our volume interrogates emerging policies and discourses as well as the lived experiences of bureaucratization from the perspective of individuals who find themselves the very objects of bureaucracies.
and the Great Kalahari Debate
Of all the English-language ethnographic film documentation projects initiated in the period after the Second World War, by far the most prolonged was the one developed by John Marshall, which he began when he was barely 18 years old. Marshall would later become one of the most acclaimed ethnographic film-makers of the latter part of the twentieth century, but at the beginning, he appears to have taken up the moving image camera more on account of the influence of his father
Indigenous media and the Video nas Aldeias project
The definition of ‘indigenous media’
If the emergence of portable sychronous sound in the 1960s was fundamental to the emergence of more overtly participatory modes of ethnographic film authorship over the following decade, a further technological development in the 1970s facilitated a film-making praxis in which those who had traditionally been only the subjects of ethnographic films could become the authors of their own films about their lives. This technological development took the form of portable, easy-to-use and
Bordering intimacy is a study of how borders and dominant forms of intimacy, such as family, are central to the governance of postcolonial states such as Britain. The book explores the connected history between contemporary border regimes and the policing of family with the role of borders under European and British empires. Building upon postcolonial, decolonial and black feminist theory, the investigation centres on how colonial bordering is remade in contemporary Britain through appeals to protect, sustain and make family life. Not only was family central to the making of colonial racism but claims to family continue to remake, shore up but also hide the organisation of racialised violence in liberal states. Drawing on historical investigations, the book investigates the continuity of colonial rule in numerous areas of contemporary government – family visa regimes, the policing of sham marriages, counterterror strategies, deprivation of citizenship, policing tactics, integration policy. In doing this, the book re-theorises how we think of the connection between liberal government, race, family, borders and empire. In using Britain as a case, this opens up further insights into the international/global circulations of liberal empire and its relationship to violence.
The very nature of ethnographic cinema – how it is practised, how it is talked about, where its limits are deemed to lie – has been profoundly shaped by the work of Jean Rouch. Through his personal example, he established the métier of ethnographic film-making as a creative activity of potentially broad horizons whose practitioners could engage in a lively exchange of ideas and methods with film-makers from many other backgrounds and with very different agendas. Moreover, he showed that it was not necessary for anthropologists to rely on
In May 1958, and four years into the Algerian War of Independence, a revolt again appropriated the revolutionary and republican symbolism of the French Revolution by seizing power through a Committee of Public Safety. This book explores why a repressive colonial system that had for over a century maintained the material and intellectual backwardness of Algerian women now turned to an extensive programme of 'emancipation'. After a brief background sketch of the situation of Algerian women during the post-war decade, it discusses the various factors contributed to the emergence of the first significant women's organisations in the main urban centres. It was only after the outbreak of the rebellion in 1954 and the arrival of many hundreds of wives of army officers that the model of female interventionism became dramatically activated. The French military intervention in Algeria during 1954-1962 derived its force from the Orientalist current in European colonialism and also seemed to foreshadow the revival of global Islamophobia after 1979 and the eventual moves to 'liberate' Muslim societies by US-led neo-imperialism in Afghanistan and Iraq. For the women of Bordj Okhriss, as throughout Algeria, the French army represented a dangerous and powerful force associated with mass destruction, brutality and rape. The central contradiction facing the mobile socio-medical teams teams was how to gain the trust of Algerian women and to bring them social progress and emancipation when they themselves were part of an army that had destroyed their villages and driven them into refugee camps.
By expanding the geographical scope of the history of violence and war, this
volume challenges both Western and state-centric narratives of the decline of
violence and its relationship to modernity. It highlights instead similarities
across early modernity in terms of representations, legitimations, applications
of, and motivations for violence. It seeks to integrate methodologies of the
study of violence into the history of war, thereby extending the historical
significance of both fields of research. Thirteen case studies outline the
myriad ways in which large-scale violence was understood and used by states and
non-state actors throughout the early modern period across Africa, Asia, the
Americas, the Atlantic, and Europe, demonstrating that it was far more complex
than would be suggested by simple narratives of conquest and resistance.
Moreover, key features of imperial violence apply equally to large-scale
violence within societies. As the authors argue, violence was a continuum,
ranging from small-scale, local actions to full-blown war. The latter was
privileged legally and increasingly associated with states during early
modernity, but its legitimacy was frequently contested and many of its violent
forms, such as raiding and destruction of buildings and crops, could be found in
activities not officially classed as war.
This chapter takes the form of a narrative, auto-ethnographic or
autobiographical account. In the period between 2002 and 2009, the author
had made several visits to New York, and to Manhattan in particular, to the
site of Ground Zero, in an attempt to understand the response of New Yorkers
to the collapse of the twin towers. She was grappling with the idea of
trauma time – the time of openness after an event that throws into doubt
what seemed to have been certain – and its political implications. The visit
recounted in this chapter took place after a gap of five years, and proved
to be a turning point for the author, challenging what she had thought her
work was about.