Monitoring of attacks on healthcare has made great strides in the past decade,
even if improvement in information has not necessarily resulted in changes on
the ground. However, important questions on the knowledge production process
continue to be under-explored, including those pertaining to the objectives of
monitoring efforts. What does our data actually tell us? Are we missing the
(data) point? This paper explores several monitoring mechanisms, and analyses
the limitations of the data-gathering exercise, affecting the ability of
healthcare workers to share their experiences. By drawing on the experiences of
those involved in the medical-humanitarian response in non-government controlled
areas in Syria, these dynamics are further brought to the fore, advocating for a
more discerning approach in the use of data for such disparate goals as analysis
on patterns of attacks (and their implications), advocacy, and
This book examines the relationship between environmental justice and citizen
science, focusing on enduring issues and new challenges in a post-truth
age. Debates over science, facts, and values have always been pivotal within
environmental justice struggles. For decades, environmental justice activists
have campaigned against the misuses of science, while at the same time engaging
in community-led citizen science. However, post-truth politics
has threatened science itself. This book makes the case for the importance of
science, knowledge, and data that are produced by and for ordinary people living
with environmental risks and hazards. The international, interdisciplinary
contributions range from grassroots environmental justice struggles in American
hog country and contaminated indigenous communities, to local environmental
controversies in Spain and China, to questions about “knowledge justice,”
citizenship, participation, and data in citizen science surrounding
toxicity. The book features inspiring studies of community-based participatory
environmental health and justice research; different ways of sensing,
witnessing, and interpreting environmental injustice; political strategies for
seeking environmental justice; and ways of expanding the concepts and forms of
engagement of citizen science around the world. While the book will be of
critical interest to specialists in social and environmental sciences, it will
also be accessible to graduate and postgraduate audiences. More broadly, the
book will appeal to members of the public interested in social justice issues,
as well as community members who are thinking about participating in citizen
science and activism. Toxic Truths includes distinguished contributing authors
in the field of environmental justice, alongside cutting-edge research from
emerging scholars and community activists.
-ethnographic work in medicalanthropology. For example, medical anthropologist Paul Farmer has been criticized for his
use of images of sick bodies to make visible what he calls “structural violence.”4
He admits that “the use of such images is problematic but sometimes necessary
in order to stir privileged populations to do something about global systems of
inequality” (Stone 2015, 180). The logic of this angle is that “the problem of
making structural violence visible is that social, political, and economic structures that are to blame for the violence are very difficult to
The status of bodies in the aftermath of the Khmer Rouge genocide
Anne Yvonne Guillou
conceptualized by medicalanthropology. Healthy body,
sick body, dying body: from this perspective, the body is where all
disorders are visible, and where the potential reforging of the links
between the individual, society and the universe is promised. It is
also the site upon which the traces of structural violence and the
relations of social domination are inscribed. During my previous
research, I had begun to realize that certain forms of illness were
thought of as being linked to the suffering endured under the
revolutionary regime of the Party of Democratic Kampuchea.4
Blease , C. , Carel , H. , and Geraghty , K. , ‘ Epistemic Injustice in Healthcare Encounters: Evidence from Chronic Fatigue Syndrome ’, Journal of Medical Ethics 43 : 8 ( 2016 ), 549 – 557 .
108 Scully, ‘From “She Would Say That, Wouldn’t She?”’.
109 Barnes, The Minority Body , p. 142.
110 Scully, ‘From “She Would Say That, Wouldn’t She?”’.
111 Lock , M. , ‘ The Tempering of MedicalAnthropology: Troubling Natural Categories ’, MedicalAnthropology Quarterly , 15 : 4 ( 2001 ), 478 – 492 , p. 483.
112 Dotson , K. , ‘ A Cautionary Tale
The bridge, the fund and insurance in Dar es Salaam
’. HAU: Journal of Ethnographic Theory , 1 ( 1 ): vi–xxxv .
Dao , A.
Mulligan , J.
( 2016 ). ‘ Towards an anthropology of insurance and health reform: An introduction to the special issue ’. MedicalAnthropology Quarterly , 30 ( 1 ): 5–17 .
Das , V.
Poole , D.
. Oxford: Oxford University Press, 1985: 307.
47 Dennis Smith, Report from Ground Zero: The Heroic Story of the
Rescuers at the World Trade Center. London: Doubleday, 2002.
48 Victor Toom, ‘Finding Closure, Continuing Bonds, and Codentification
after the 9/11 Attacks.’ MedicalAnthropology (2017). http://dx.doi.org/
49 William Langewiesche, American Ground: Unbuilding the World Trade
Center. London: Scribner, 2003: 146.
50 Smith, Report from Ground Zero, 352.
51 Fiona Sampson, ‘Heidegger and the Aporia: Translation and
highlighted from MedicalAnthropology
this label fell into the trap of considering Biomedicine as the ‘golden
Relevant for this whole chapter is the discussion
carried out by Kuschick, Medicina popular, pp. 130–7. Although the study
refers to the present, because of the materials used, some of its
conclusions can more easily be
Israeli Political Discourses’. Paper written for the 2015 OMSS
conference, University of Oxford, 15–16 May 2015.
Willen, S. S., 2010. ‘Darfur through
the Lens of the Shoah’, in B. Good, M. Fischer, S. S. Willen, and
M.-J. Del Vecchio Good, eds, A Reader in MedicalAnthropology ,
Oxford: Wiley Blackwell.
Wurgaft, N., 2007. ‘In Face
of Criticism, Foreign Min. Campaign to Explain
Environmental enumeration, justice, and apprehension
Nicholas Shapiro, Nasser Zakariya, and Jody A. Roberts
Roberts, J. A. 2014. Unruly technologies and fractured oversight: Toward a model for
chemical control for the twenty-first century. In S. Boudia and N. Jas (eds), Powerless
Science?: Science and Politics in a Toxic World. New York: Berghahn Books.
Rose, D. B., van Dooren, T., Chrulew, M., Cooke, C., Kearnes, M., and O’Gorman, E.
2012. Thinking through the environment, unsettling the humanities. Environmental
Humanities, 1(1), 1–5.
Saxton, D. I. 2015. Strawberry Fields as extreme environments: The ecobiopolitics of
farmworker health. MedicalAnthropology