Search results

You are looking at 1 - 10 of 11 items for :

  • Patient and public involvement (PPI) x
Clear All

A Research Handbook for Patient and Public Involvement Researchers Chapter 1: Patient and Public Involvement (PPI) and the research process Andrew C Grundy Chapter overview This chapter defines and introduces the different stages of the research process: from identifying a problem, to reviewing the literature; then developing a research question; designing a study; obtaining funding and ethical approval; recruiting participants; collecting and analysing data; and reporting and disseminating findings. This chapter will outline how users of health services, their

in A research handbook for patient and public involvement researchers

This handbook is written for patients and members of the public who want to understand more about the approaches, methods and language used by health-services researchers. Patient and public involvement (PPI) in research is now a requirement of most major health-research programmes, and this book is designed to equip these individuals with the knowledge and skills necessary for meaningful participation. Edited by award-winning mental-health researchers, the book has been produced in partnership with mental-health-service users and carers with experience of research involvement. It includes personal reflections from these individuals alongside detailed information on quantitative, qualitative and health-economics research methods, and comprehensively covers all the basics needed for large-scale health research projects: systematic reviews; research design and analysis using both qualitative and quantitative approaches; health economics; research ethics; impact and dissemination. This book was developed during a five-year research programme funded by the UK’s National Institute for Health Research (NIHR) called Enhancing the Quality of User Involved Care Planning in Mental Health Services (EQUIP). The handbook clearly outlines research practices, and gives an insight into how public and patient representatives can be involved in them and shape decisions. Each chapter ends with a reflective exercise, and there are also some suggested sources of additional reading. People who get involved in health research as experts from experience now have a textbook to support their research involvement journey.

This book was developed during a five-year research programme funded by the UK’s National Institute for Health Research (NIHR). This study aimed to improve service user and carer involvement in care planning in mental health services. The study was called Enhancing the Quality of User Involved Care Planning in Mental Health Services (EQUIP). Its aim is to help other public and patient representatives increase their understanding and skills in research methods. The EQUIP programme used a range of different research methods to achieve its goals, and you will read

in A research handbook for patient and public involvement researchers

individualised strategies targeted to specific audiences, including drawing on the expertise of local collaborators and networks. 138 BEE (RESEARCH) PRINT.indd 138 11/05/2018 16:16 A Research Handbook for Patient and Public Involvement Researchers PPI stories from EQUIP Next, Garry talks about his experiences of disseminating the research findings from EQUIP. Garry’s story My involvement in research began when I was invited to participate in a focus group. Since then, I have been invited through my local networks to get involved in research myself. I have become a

in A research handbook for patient and public involvement researchers
Open Access (free)
Designing and road testing new measurement scales

A Research Handbook for Patient and Public Involvement Researchers Chapter 6: Psychometrics: designing and road testing new measurement scales Professor Patrick Callaghan Chapter overview Measurement scales (questionnaires) are often used in quantitative research to summarise the experiences of a group of participants, for example the number and range of symptoms they report, or their level of satisfaction with their care. We can use these questionnaires once to get a snap-shot of people’s scores at one point in time, or we can ask people to complete them on

in A research handbook for patient and public involvement researchers

A Research Handbook for Patient and Public Involvement Researchers Chapter 2: Introduction to systematic reviews Kelly Rushton and Owen Price Chapter overview Health professionals must make sure that the treatments they provide are safe and have been proven to work. This means they must be able to access and understand all the available research relating to treatments that they use. There can be hundreds of research studies conducted on each treatment, so it is often not practical for busy health professionals to gather all of the evidence themselves. Deciding

in A research handbook for patient and public involvement researchers

A Research Handbook for Patient and Public Involvement Researchers Chapter 7: Introduction to Qualitative Research Methods Helen Brooks, Penny Bee and Anne Rogers Chapter overview The term ‘qualitative research’ encompasses a wide range of different methods. What underpins these is a shared aim of understanding the meaning people attribute to experiences in their lives. It has been defined as an ‘interpretive approach concerned with understanding the meanings which people attach to actions, decisions, beliefs, values within their social world’ (Ritchie and

in A research handbook for patient and public involvement researchers
Open Access (free)

straightforward to understand or complete. A Research Handbook for Patient and Public Involvement Researchers PPI stories from EQUIP It was incredibly important that I and my colleagues were involved in this aspect of the EQUIP study as we were able to contribute a lot. We produced a lay-summary of the study’s aims, and we piloted the survey, which gave us a good idea of how long it would take to complete, and what issues might be encountered in its completion. We revised the survey where we could to make it as user-friendly as possible. We attended outpatient clinics to

in A research handbook for patient and public involvement researchers

by the data collected during the study • Inductive (e.g. akin to grounded theory) – analysis is guided by existing theories and frameworks (e.g. • Deductive certain types of framework analysis) • A combination of deductive and inductive approaches A Research Handbook for Patient and Public Involvement Researchers Introduction Inductive approaches are most commonly used within qualitative data analysis with knowledge built from the ground up. Data analysis is usually carried out concurrently with data collection in line with the constant comparison method

in A research handbook for patient and public involvement researchers

users, carers and professionals (Bee et al., 2015b; Cree et al., 2015; Grundy et al.,2015). I was an integral member of the team who delivered this training course to the community mental health and social care professionals participating in our trial. To prepare me for my role, I attended a ‘train the trainers’ course (Fraser et al., 2017), which equipped me with the practical skills for training these professionals. A Research Handbook for Patient and Public Involvement Researchers PPI stories from EQUIP I ended up delivering our new training intervention to 18

in A research handbook for patient and public involvement researchers